PARDAN is research conducted to explore how adolescents with disabilities have experienced the pandemic in rural Myagdi and Udaypur of Nepal using participatory, inclusive research methods. We attempt to portray different research tools that can be used to ensure the participation and inclusion of adolescents with disabilities and hence demonstrate an example of a research with adolescents with disabilities.
Intersecting vulnerabilities of disability, low socio-economic status, marginalisation and age indicate that adolescents with disabilities are likely to be uniquely affected by the COVID-19 pandemic. Yet, there has been limited research from low-and middle-income countries about the effect of the pandemic on adolescents with disabilities.
In order to capture their experience, it is important that they participate in the design of tools and methods to collect data.
We will conduct participatory action research in two rural areas of Nepal to:
- Understand how the pandemic has affected adolescents with disabilities and their families.
- Develop peer-research methods and tools with adolescents with disabilities to increase their participation in research
Participants will pilot these tools and inform the development of training materials to increase the participation of adolescents with disabilities in research about current and future public health emergencies.
- Research brief about the methods we used (English)
- Research brief about the methods we used (Nepali)
- Research brief about our findings (English)
- Research brief about our findings (Nepali)
- Understanding how children and young people with disabilities experience COVID-19 and humanitarian emergencies in low- and middle-income countries: a scoping review protocol.
- International Version: https://www.youtube.com/watch?v=HwgOrsxBODk
- Nepal Version (with Sign Language): https://www.youtube.com/watch?v=-sjvEfjetw0
- Principal Investigator: Dr. Joanna Morrison, The UCL institute for Global Health
- Dr. Niraj Poudyal & Mr. Dipesh Khadka – Kathmandu University, School of Arts
- Mr. Sagar Prasai from Diverse Patterns
- Dr. Mary Wickenden & Ms. Brigitte Rohwerder – The Institute for Development Studies
- Ms. Insha Pun, Myagdi
- Ms. Sushmita Shrestha, Udaypur
Other team members:
- Nir Shrestha, Shraddha Pokharel and Sabina Lakha from Diverse Patterns
- Sara Wong from University College London.
- Disabled Association, Myagdi (Mr. Surendra Khattri)
- Disabled Women Association, Udaypur (Ms. Sita Paudel)
Advisory Committee Members:
- National Federation of Disabled Nepal (NFDN) – Mr. Mitralal Sharma, President
- Prayatna Nepal – Ms. Sarita Lamichhane – Chairperson
- Parents Federation of Persons with Intellectual Disabilities – Mr. Raju Basnet , President
- Nepal Disabled Women Association – Ms. Tika Dahal , Chairperson
- National Federation of Deaf Nepal – Mr. KP Adhikari , President
- Resource Center for Rehabilitation and Development Nepal - Mr. Suryabhakta Prajapati , Director
Funded by: The UK Arts and Humanities Research Council
The UCL institute for Global Health
Kathmandu University School of Arts
The Institute for Development Studies